Hey everyone! June has just flown by and it's been an exciting month! We have three updates for you: 1 - Austin (of course), 2 - Max (he's having a blast) and 3 - New house! 1. Mr. Austin has had a good few weeks! He has definitely required additional time to fully get over this virus and we are happy to have been able to do that at home. We are still dealing with a little bit of dehydration that occurs overnight, but with his high level of fluid intake first thing in the morning, he's able to bounce back pretty quickly! We will continue to trouble shoot his overnight intake. He's now on a continuous glucose monitor (CGM) called Dexcom G6. This device is used by MANY diabetics and when we are able to figure out all the little quirks of it, it will be great! Just to clarify, Austin is NOT diabetic, he is currently having episodes of hypoglycemia (low blood sugar) and for his safety, the Dexcom alerts us when he is low. Speaking of the hypoglycemia, we met wit
Yikes! Yesterday was our 2 week mark at Children's. In most ways it feels like forever ago we were in the ED having no idea we would still be here as I write this! All week it's been "maybe tomorrow" and then tomorrow comes and goes! Austin had a couple rough days on Thursday and Friday. In the transition from his IV fluid support to his normal at home routine of free water, he didn't have enough fluid intake. He became very dehydrated again on Wednesday into Thursday. He received 1 fluid bolus on Thursday and 2 yesterday. His labs this morning were much improved and he's back to his playful, chatty self! We are getting hopeful that "maybe tomorrow" will actually happen. Austin's glucose levels have been pretty stable and we know we have a plan that would work if we needed it. Trial #2 with the glucose gel worked. It did cause a disruption in his bowels and stools so we are hoping we don't have to use it very often. We also added