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Showing posts from October, 2019

Making Lemonade out of Lemons!

Well, once again, it's been awhile and there is too much to cover everything so I will do my best to summarize.  I know it's time for an update when people start asking so thank you for the reminders! Since being home, we've had our ups and downs.  Mostly ups so that is good!  PHS (Pediatric Home Services) IV nurse Lynn and the home care nurses are back in our home and providing wonderful care for Austin.  Over the next few weeks we are hoping to get into a more regular schedule but for right now, they are all doing a great job of filling in and getting routines and orders going again! As for Austin's progress, there is NO DOUBT that we made the right decision to restart his TPN/lipids.  Austin is so happy, he has gained so much strength and has made so much progress with his physical therapy and occupational therapy.  He is now sitting up on his own to play with his toys, rolling over consecutive rolls and is more willing to put his feet on the floor.  As for fe