First of all, I just realized my last post was on 12/27/18, so Happy New Year! We hope 2019 brings love and health to all! This past Monday was a fabulous day! We got to hang out with Max and celebrate Austin's 5 month birthday! We ran some errands with Max and then made a first time visit to the new Shakopee Community Center. Congrats Shakopee, you did an amazing job! Max enjoyed the indoor play area and then we walked a few areas of the facility. Next time, the pool! Austin is weighing in at 6.1kg (~13.7 lbs) and about 63cm (~25 in). He has mastered the growth chart and is right on target for his diagnosis and age! A little has happened in the last month (if it was a lot, you would have heard from me sooner)! He has continued to tolerate increases in his enteral (tube) feedings and is currently at 16ml/hr. His outputs have been good the last couple days so I'm thinking we will advance him to 17ml/hr this weekend. His labs have been great and therefore, the d
Keeping up with Four Joneses!