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Showing posts from December, 2019

Merry Christmas and Happy New Year!

Merry Christmas and Happy New Year from the Joneses!  As always, Santa was very good to us again this year.  We are blessed to have so many amazing family and friends.  We are reminded of this in various ways all year round, but especially during the holiday season!  We thank you, we love you and we appreciate you! The good news...nothing crazy has happened in the past 2 months.  The bad news....I haven't updated  in the past 2 months!  I will make an attempt to fill you in.  Austin has been continuing to reach milestones at his pace.  It took a little longer than we had hoped, but he's growing again!  On Monday, he was 8.9kg (approx. 19 lbs & 4 oz)!  We are so happy for this growth!  He continues to need the support of TPN/lipids (IV nutrition) at night.  We start him at 7:30pm and he's done at 7:30am.  Being attached to IV's at night has minimal impact on his (and our) daily activities and has been so beneficial for him.  He still gets his g-tube feedings 24