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Showing posts from August, 2019

Flexibility and Patience

We must keep reminding ourselves that our flexibility and patience are being tested, but we will continue to be resilient! We spent Friday morning at the Minnesota State Fair and had a wonderful time!  This is the first opportunity Max has had to ride the rides and experience some of the wonderful tastes of the fair!  I think the pictures will tell more than my words so I'll let you enjoy! On our way home Austin threw up for the 2nd time in 2 days. He also had not had a wet diaper all morning.  After our rollercoaster of a summer, we decided a stop at Children's on the way home was the best decision.  As in the past, Austin's labs showed no signs of dehydration and he continued to be his happy go lucky self!  However, GI was contacted and the decision was made to do a follow through study on his GI tract and possibly an endoscopy (camera down his throat to look at his esophagus).  So, the decision to move to inpatient was made and 6 hours later we were

Happy 1st Birthday Austin!

Happy, happy birthday to our sweet, cuddly, strong and recently stubborn little boy!  Austin is officially 1 year old today and working hard to sit up independently while continuing to work on transitioning to hands and knees because we all know the next step is crawling!  Yikes...gates on standby!  He now has 2 teeth with more on the way!  The ones that have popped through are cute little chicklets on the bottom!  He's chatting and not afraid to give us his opinion, often times cracking himself up!  He had a great day today and thanks everyone for their birthday wishes! Now on to the "other" stuff!  Unfortunately, even though I have not posted, it doesn't mean things have been quiet.  Austin continues to struggle to gain weight and is still weighing about 8kg (just shy of 18lbs).  Not a huge concern.  To make a long story short, he's had very good stretches and then we hit a hurdle.  He has had a couple more episodes of vomiting that we've been able to t