The latest, Mr. Austin is doing well! We've had his feeding rate at 70mL/hr and full strength formula since Monday night! His labs continue to improve and are almost his baseline. Here's the tricky part. Nobody wants to discharge him (including us) until we have a plan and we know the plan works to treat his hypoglycemia (low blood sugar) from home. Being readmitted is the worst!
Trial #1 - Austin's blood sugar dipped to 55 last night around bedtime. We tried putting glucose tabs crushed in 30mL of water in his gtube. He threw up about 10mL about 10 minutes later and then had some back to back stools. He was clearly uncomfortable and went from sleeping nicely to rolling around and frustrated. His blood sugar still increased to the 60's throughout the night. Overall, that plan just wasn't nice for a short gut kiddo!
Trial #2 - Currently in the works. The hospitalist team has ordered glucose gel to be given through his gtube after his next hypoglycemic event. Problem - inpatient and outpatient pharmacy here at Children's doesn't have it. Abbott to the rescue! We've been told someone from Abbott is running it over to us! (For those of you not in the Twin Cities, Abbott is the adult hospital right next door.). So far today, his sugars have been in the 70's and we're only checking every 6 hours so it's a lot of wait and see.
Home, well, home is on hold until we have a plan that works! Ugh...we will get there!
Thank you everyone for your thoughts and prayers. We appreciate each and every one of them!
Hugs,
Tara (Brian, Max and Austin too)
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