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Just Hanging Around...


Austin is doing well!  Yesterday around 2pm we started him back on 1/2 formula and 1/2 pedialyte.  He also started imodium (scheduled 3 times per day).  He got 2 doses yesterday and will get all 3 today.  He tolerated both changes so this afternoon we increased his feedings to 3/4 formula and 1/4 pedialyte.

To back up a bit, in summary since his last hospitalization at the end of August, he was short on calories and fluid volume so he began to lose weight and dehydrate.  I talked to Dr. Kevan and she wanted us to increase his rate from 41mL/hr to an end goal of 50mL/hr.  We quickly went from 41 to 47 and got stuck there as he started having issues with gas and intolerance.  At the time, we didn't realize it immediately, but he also started "dumping" (the formula was essentially going right through him so he wasn't absorbing enough calories or fluid).  So over the course of the last couple weeks, we've fought dehydration and lack of weight gain.  On Friday we made the decision we couldn't safely keep him hydrated due to the dumping, so we brought him to the ER at Children's....again!

Austin's goals while here are to slow down the motility of his stools, maintain hydration and begin gaining weight.  We are carefully monitoring him as we taper his feeds up to where they need to be and also start the imodium.

They took a stool sample to check for a couple other "weird" things that may be going on, but so far nothing has come up as a concern.  We are waiting for a couple more results.  The doctors really don't expect them to show anything but wanted to rule out anything that might hinder his progress.

Dr. Kevan begins rounding here tomorrow so we are anxious to talk to her and what she is thinking.

Praying we can be all be home again mid-week, but Austin will dictate that!

Thanks everyone for the outpouring of love, support, thoughts and prayers!  You are all amazing and we are so thankful for you!

Hugs,
Tara and Brian
Max and Austin

Comments

  1. Austin's cheerfulness, even in these circumstances, is so heartwarming! He knows he is loved! :)

    ReplyDelete

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