or if you are Austin, great news! Austin is now 1 month post op from his reanastomosis and he is doing better than we ever could have imagined! He is a growing, thriving, almost 8 month old! Austin loves to play with toys and is doing a great job of using his hands. He practices bringing things to his mouth and is rolling over in both directions! He is a smiley and happy baby! It's pretty apparent to Brian and I that he feels so much better than before surgery. Medically, he's exceeding all expectations. He's currently getting 23ml/hr in his feeding tube (he left the hospital at 18ml/hr). As of last Wednesday, he's getting six 6ml bottles each day (he left the hospital with five 5ml bottles). Since discharge Dr. Kevan has decreased his lipids rate/volume and his TPN calories not once, but twice! At this time, he still requires IV nutrition 18 hours a day.
Austin is going to keep us busy in the next couple weeks as he has 3 upcoming appointments. He will see the audiologist (this is routine for babies with Down Syndrome), surgery (Dr. Kreykes) and GI (Dr. Kevan). We're predicting uneventful audiology and surgery appointments, but we are hopeful Dr. Kevan will provide us some insight into short term and long term goals for Austin!
The first week in April was my spring break! I got to spend the week with Max and we did some really fun things together! It was time for Max to get spoiled and I will admit, it happened! Well deserved as he has been a champ through all the life changes that have occurred since Austin joined our family! Max is and will continue to be a fabulous big brother!
That's all I have for now! Enjoy the pictures! I promise a little more frequent updates in the upcoming month!
We wish everyone a blessed and Happy Easter! We continue to thank you for all your thoughts and prayers! We are incredibly grateful for all the love and support!
Hugs,
Brian and Tara
Max and Austin
Austin is going to keep us busy in the next couple weeks as he has 3 upcoming appointments. He will see the audiologist (this is routine for babies with Down Syndrome), surgery (Dr. Kreykes) and GI (Dr. Kevan). We're predicting uneventful audiology and surgery appointments, but we are hopeful Dr. Kevan will provide us some insight into short term and long term goals for Austin!
The first week in April was my spring break! I got to spend the week with Max and we did some really fun things together! It was time for Max to get spoiled and I will admit, it happened! Well deserved as he has been a champ through all the life changes that have occurred since Austin joined our family! Max is and will continue to be a fabulous big brother!
That's all I have for now! Enjoy the pictures! I promise a little more frequent updates in the upcoming month!
We wish everyone a blessed and Happy Easter! We continue to thank you for all your thoughts and prayers! We are incredibly grateful for all the love and support!
Hugs,
Brian and Tara
Max and Austin
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