Austin continues to make good progress! He's awake and alert, he's smiling and squawking at us! He is getting more comfortable being held, had some tummy time with physical therapy and enjoys the time in his swing!
As of this morning, he's done with his withdrawal medications. As for his feedings (called enteral intake), Dr. Ferenci (GI) had decided on Tuesday to start increasing them by 1mL/day. He's done well and we have been warned this is a very slow process. Yesterday his output through his ostomy increased from about 50mL's to about 120mL's, so we put a hold on for today. So, an extra day at 4mL/hr. He isn't technically dumping, but due to the significant increase, the doctors wanted to give him a little rest.
Again, it's so much of a balancing act. If he gets to 25mL/hr then he doesn't need the TPN...this is pretty unrealistic at this time, but gives you an idea of what hefty goals he's pursuing. However, the more enteral, the less TPN and the easier it is on his liver. The other main goal is around how long each day he needs to be getting the TPN. Can he tolerate intervals verses constant? Austin will let us know! Dr. Ferenci has very high expectations and goals for him! He said this morning "he's going to do well!"
Continued thanks for all your thoughts, prayers, cards, gifts and the outpouring of overall support. We appreciate and are thankful for each of you!
Love and hugs,
Tara and Brian
Max and Austin
Comments
Post a Comment