Austin continues to do well as we make slow and deliberate (just like the sloth lovey) improvements. Dr. Ferenci ordered a couple changes. Yesterday Austin had 3 oral feedings. This means they turn off his enteral feeding for an hour 3 times each day and 1/2 way through the hour, he drinks a 5mL bottle! Oh he loves his teaspoon! Today he had 4 bottle feeds and again did very well! The second change was his TPN/lipids. Yesterday they cycled them to be off for 2 hours. While they were off, they checked his blood glucose at 1 hour (83) and at the end (69) so he passed! Today he is cycling for 4 hours. His blood glucose half way through was 92 and they will check it again at the end. Fingers crossed he's looking good.
We are asking for some additional prayers tomorrow. Austin will go to surgery for a short procedure to put his g-tube in. It's very routine, however, it's still a surgery. It's scheduled for 1:15pm (since he's inpatient, we've learned to give or take that time).
We also have begun the overwhelming amount of teaching and training that is necessary to take care of Austin at home. Today we focused on his dressing change for his central line (Broviac). This is the most serious and tedious requiring a sterile field due to the risk of infection. We will most likely have help from our home health nurses, but we also need to be able to do it if/when necessary.
Thanks in advance for all your thoughts and prayers. I will update here after his surgery tomorrow.
Love and hugs,
Tara and Brian
Max and Austin
I know you guys are up to the task. I’m just sorry you all have to be challenged with it. Austin has weathered all of these changes so well. He is such a little warrior. Oh, and have I mentioned how precious his little face is? What a major cutie!
ReplyDeletePrayers for the surgery and for the parents for strength and faith that they can manage all of this. Love ya’