Austin continues to do well. Pretty sure he's telling us that he will do things on his own time...stubbornness just might run in the family!
They continue to try to taper his epinephrine (the last presser) very slowly, but he catches on each time. They ordered an echocardiogram this morning just to check the small holes we knew at birth and also if there were any changes since the shock on Wednesday. We did not see cardiology this afternoon, so no news is good news. His nurse checked the report and it states the ASD (atrial septal defect) is still present but small and the VSD (ventricular septal defect) has closed. In summary, his heart is stable.
He continues to "eat up" the sedation medications. Today they gave him extra bumps to keep him quiet rather than letting him wake up, sleep, wake up, sleep.
Dr. Valusek (surgeon) stopped by this morning and decided she would rather put his Broviac (long term port for his TPN) in while he's still on the ventilator. That way they don't have to re-intubate him for surgery. The plan is to have this done sometime Wednesday. Meaning he will be on the vent until surgery is over and then the plan will be to taper him and discontinue it. She also shared that his stoma looks great! Nice and pink which as we know from last week is exactly what we want. Lastly, I had written in a previous post they would take down the stoma in a few weeks, doctor told us this morning that would be too risky with the amount of stool he will be producing. Since his stool will be very acidic, it would lead to skin breakdown really quickly. The plan will be to wait until his stool is more formed which will take time.
Austin is such a fighter. He gets a tiny bit better everyday. It's so hard to sit here and watch our little man sedated and on a ventilator, but we know his body needs the time to recover and rest. We can't wait for the day we can pick him up and give him loves...it's been too long already!
Thank you for all your prayers! Please keep them coming!
Love,
Tara and Brian
Max and Austin
They continue to try to taper his epinephrine (the last presser) very slowly, but he catches on each time. They ordered an echocardiogram this morning just to check the small holes we knew at birth and also if there were any changes since the shock on Wednesday. We did not see cardiology this afternoon, so no news is good news. His nurse checked the report and it states the ASD (atrial septal defect) is still present but small and the VSD (ventricular septal defect) has closed. In summary, his heart is stable.
He continues to "eat up" the sedation medications. Today they gave him extra bumps to keep him quiet rather than letting him wake up, sleep, wake up, sleep.
Dr. Valusek (surgeon) stopped by this morning and decided she would rather put his Broviac (long term port for his TPN) in while he's still on the ventilator. That way they don't have to re-intubate him for surgery. The plan is to have this done sometime Wednesday. Meaning he will be on the vent until surgery is over and then the plan will be to taper him and discontinue it. She also shared that his stoma looks great! Nice and pink which as we know from last week is exactly what we want. Lastly, I had written in a previous post they would take down the stoma in a few weeks, doctor told us this morning that would be too risky with the amount of stool he will be producing. Since his stool will be very acidic, it would lead to skin breakdown really quickly. The plan will be to wait until his stool is more formed which will take time.
Austin is such a fighter. He gets a tiny bit better everyday. It's so hard to sit here and watch our little man sedated and on a ventilator, but we know his body needs the time to recover and rest. We can't wait for the day we can pick him up and give him loves...it's been too long already!
Thank you for all your prayers! Please keep them coming!
Love,
Tara and Brian
Max and Austin
Comments
Post a Comment